Cluster Headaches: My POV on Excruciating Pain!
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information to the headache sufferer and the treatment options.
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{ 25 comments… read them below or add one }
I am with you, this is my 3rd year diagnosed with the cluster, 5th year having them.
Hardest part isn’t the damn pain- it’s the fatigue. My work slides downhill, short tempered all the time and always dreading having a random cluster event in public when the peak of the cycle approaches.
i have been getting these since i was 16. i am female so they told me i had migraines. still to this day…24 yrs later i dont know what a migraine even feels like!!! it took yrs for me to figure out what they were…an article from someone overseas!!..i had to bring that to the docs and tell them stop putting me thru tests and trials and tons of different meds that did nothing but give me bad side effects. u r lucky. litium stopped mine for 2 yrs but now they r back, everyday + nite.good luck
Barometric pressure is a big factor in my clusterhead aches i find as the seasons change i get heads for a few weeks due to the changing pressure.
i only get them when sleeping just as i go into a deep sleep and my brain waves change
Hi, I´m from Argentina, I suffer the Cluster Headaches since three years ago. No treatment results for me, no oxigen, no sumatriptan, no lithium, no punches in my head. The only thing that seems to work is acupuncture. The pain is lower than years before and the attaks stands still for just half and hour each time ( The first years I had 6 hours attacks each day) Try acupuncture, you have nothing to lose.
Good luck.
I wonder if I have them , probably not the worst headaces ive had were for about a minute due to stress+dehydration+mental effort and felt like your brain is a muscle out of energy like your leg after a running effort or something.
but they do come in clusters …….
Thanks for the video. I found out today that I have cluster headaches and that they’re not sinus headaches as I was taking antibiotics for a week b/c the doc prescribed them to me. I realize now that I’ve had cluster headaches for the past 6 years. I always thought that it was severe sinus. CHs are my morning wake up call as I get one around 9:00 am then at 2:30 pm and finally 1:00 am each day. I guess I’m part of the lucky few b/c I get them every other year for 1 1/2 months beginning in April.
sumatriptan works great 5 to 10 mins and am back to normal you can only have to shots in 24 hours which is not so good . oxygen also works well . when my headache start i am prescribed 60mgs of premisalone a day, this helps as but u cant be on it for long as it has severe side affects . i normaly take this for does for 1 week and then i have to be weaned off it which takes another 2 weeks . i also take 120mg of vatrapamil (i think thats how u spell it ) in the morning and 120mg at night .
That was a great video! Still trying to find something that works for me! Loved the explanation!
i got them when i was 7 i am 14 now
Oh yeah…VERY hot! LOL!!! I wish! Hahaha! THIS is MY favorite comment!
this is great man, thanx. I have been having this already for 23 years. Can you imagine. During the day I can abort some attacks by drinking strong coffee and sigarettes right at the beginning of the attack. but sometimes not. You know how it feels so I don’t explain it. I just keep crying with any sound. My attacks take mostly 3 hours when it comes at night but during the day 45 minutes. I am 33 and if doktors say that it can start at the age of 20. they are wrong in my case. daud.
This guy is HOT
Been getting it for 3 weeks now! Got some good med’s which is keeping it under control for now! Nice to know your not alone though ah!!
not if the person is a chronic sufferer. Its not always the cluster, some people can have them every day, every other day, every day for a month, for 2 or 3 or even 4 months then nothing for a year or two years or three. The main way to know is the description of pain: one sided in and around the eye headaches, some tearing perhaps, inability to sit still, a desire to bang your head or grind it into the wall,floor, or your the palm of your hand, etc…
I suppose…’real’ luck probably would have included taking a pass on the whole CH experience…and my thoughts go out to all the CH martyrs who suffered so much more than I!
oh man, 5 days you are lucky
i feel ur pain man, but ure lucky. i have chronic cluster headaches, EVERYDAY! so thank to God that u dont have them everyday like me
Thank you. This explains alot for me. I think I have this type of headache.
Don´t know why I came to look at this kind of thing this evening…I haven´t had an attack for nearly 2 years. I´m now 47. The attacks have become more infequent. This was avery sympathetic clip and I have just seen more sufferes for the first time and all their screems and pleedings to… all come flooding back. It´s Hell…. It made me cry just to recognise it…To all sufferers, hold on ! Mark.
Im a cronical sufferer of cluster headaches. Its great to see a video like this, cause i can see what others think about it. Nice job, really. I dont know anyone personally who have this kind of headache, so its nice to “talk” on videos about this with someone. thanks.
This is great. I think CH awareness is something beautiful. I had to present the information to my neurologists in order to get diagnosed. It is good to get the information out there. I think, the most difficult part of having CH is the anxiety of waiting for the pain to come day after day, and of course being rendered helpless for whatever time it lasts. I could take excruciating pain for a few hours a night, ya know? But the knowledge that it’s going to come back tomorrow kills me!
A year or so, I was in such pain. I had blood from my nose and I was shaking from the pain, didn’t sleep 2 weeks non-stop…. I wanted to kill myself.
It happened again for 2 weeks now I have constant headache, well sometime it isn’t that bad but stabbing of the eye and around the eye is non-stop, I am used to it now… I have them nearly all the time but sometimes it gets so bad I just bury myself into pillow… hoping the harder I push, the less it stops.
I wished I would be resting in peace.
no this is not a cluster headache. this was probably just a bad migraine man. cluster headaches come in clusters hence the term. if they come back you could just have a really out of wack cycle but very unlikely.
i feel your pain man.. my pain never stops. i have long term chronic CH. ive had them for about four years now with my longest remission not even being a week. i give birth everyday man really though. mine come at about 2 also ironically. i dont know if its better or worse because its usually about 2 pm. i seldomly wake from them but it does happen. and when it does it is the worst at this point. probably because it comes out of a dead sleep. i have much knowledge i can offer, write me back bro
Is it possible to get one of these headaches just once? 4 years ago I got this pain behind my left eye and it was unbearable, the most pain I had ever felt, I had my hands on my head and I really wanted to die, if someone handed me a gun I would have shot myself there and then. I was rushed to hospital and they gave me an injection to numb the pain but it didn’t work and they said there was nothing wrong with me. After learning about cluster headaches I’m worried the pain will come back.